Saturday, 16 July 2016

A Hidden Illness; My story of Postpartum Psychosis

Week 7 at Coombe Wood 'Self Portrait'



A Call for Help (PLEASE SIGN THE PETITION BELOW) 

Week 4 at Coombe Wood 'Children'
On 1st April 2016, at 11.05am, I gave birth to a wonderful baby boy. When the midwife placed my baby onto my chest it was the most euphoric experience.  I felt complete.  I felt so much love for this little person. Being pregnant couldn’t have come at a better time. I was excited and ready to be a loving mother. I love children, their wisdom, their creativity, their energy.  As a profession, I work with children who experience domestic violence; my partner is a youth worker. I’d read everything you can read about childbirth. What I was less aware of was what could happen following birth, how common it was for a mother to suffer mentally. My mental health began to deteriorate rapidly after my son was born.  Luckily, I was quickly diagnosed with the rare and severe mental illness Postpartum Psychosis and Postnatal Depression.

1 in 1000 mothers suffers with Postpartum Psychosis and Depression in the UK. It is statistically the biggest killer in women following the birth of their child.  The best way of treating this illness is to receive psychotherapy and medication but most importantly to be with baby to establish a loving bond.  Mother and Baby Mental Health Units enable mums to recover by allowing the baby to be with mum in hospital whilst she gets better. Mother and Baby units specialize in perinatal care.  I do not exaggerate this when I say that the Mental Health Mother and Baby Unit I was admitted to saved my life.  

Sadly, the unit was located in London, approx 200 miles away from my home in South Wales.  There are no Mother and Baby unit's in Wales. I believe this is a tragedy. My partner had to travel from Wales to London every weekend.  Financially, we were unprepared for the costs of travel, especially as my Partner was made redundant the day the baby was born. I felt very far away from home and my family. There is only a handful of mother and baby units in the UK, so it is a postcode lottery that determines whether a woman receives the specialist care she needs.

I’d suffered with circumstantial depression twice in my life but had never been as ill as I was following child birth.  This illness isn’t an easy one for people to hear, it is dark and dangerous and my opinion is that it is often swept under the carpet in society. Only a small amount of people are aware of Postpartum Psychosis. I know that I am one of the lucky ones as I was listened to and was able to receive the specialist care I needed. So many women do not have access to this support and never get heard.  

Week 1 at Coombe Wood
For women without access to a mother and baby unit, the only alternative is for her to be admitted to a psychiatric ward away from her baby. I spent 4 days in a psychiatric ward in Wales before being transferred to London.  There is a lot of evidence that shows that separating a mother from her baby can worsen the delusions and psychosis.  I hope my story provides insight into how devastating this illness is.  I hope and pray that The Welsh Government listens to the voices of desperate, ordinary women who need specialist support. I will try my best to advocate for there to be a mother and baby unit in wales. This illness is indiscriminate; it could happen to any woman expecting a child.  I was an ordinary person, who drew a short straw.



My Story 


At two days old, my son and I were discharged from the maternity ward in the Royal Gwent Hospital. The night we brought our baby home, I noticed a rash on his back.  I became manically frantic and upset. I called 999. I believed the baby had meningitis.  I was wailing, ‘MY BABY, MY BABY!’ In my head, he was not responsive.  When the paramedic came, she reassured me that it was just a heat rash.  That night, the hallucinations began. 

I decided to block them out, I thought they came about because of how utterly exhausted I was. I had not slept since the night before giving birth.  The visions didn’t last long. They came in little flashes out of the corner of my eye, through the bars of my sleeping child’s crib.  I saw images of him distorted, beaten up and dead.  I didn’t tell anyone about them at first, I just thought it was my exhausted head playing tricks on me.

The next day we had our families arrive to see the baby. They say now that during the day I was speaking 100 miles per hour and I wanted to throw a party. I was laughing hysterically one minute and then crying hysterically the next. It is only now that I realise I was having a manic episode.  I barely spent time with the baby.  I didn’t eat or drink and had forgotten how to take care of myself.  I hadn’t an idea of how to breastfeed and was struggling. My breasts started to become sore and engorged. My baby wasn’t feeding and was hungry.

My midwife Suzanne came to see me in my home and noticed that I was in need of help.  She arranged for us to stay in the local birthing centre for a night or two in order for the midwives to help me breastfeed.


It was in the birthing centre that the psychosis became worse. 
Week 6 at Coombe Wood 'What I Saw'

The visions were becoming more frequent.  I would look at my baby in the clear plastic hospital cot and see his face appearing angry, beaten up and dead.  There were posters of babies on the wall in the room. Their faces appeared angry, and their eyes blackened.  I was crying and laughing and talking so fast, I had no control over what I was saying.  I couldn’t dress myself or look at myself.  I felt like a failure because my breasts were in such poor condition.  At one point, my partner had to cradle me to sleep as I frantically believed that if I went to sleep I would die.  I was terrified, shaking, and crying.  I started having thoughts that my partner and the baby would be better without me and that I couldn’t take care of him.  I didn’t eat. I hadn’t ate more that few mouthfuls since the baby was born, this would go on for a further 2 weeks. I couldn’t sleep. I thought I would never sleep again. 

‘This room looks like a pigsty!’ the nurse said. I started making sure all the cups on the tea tray were aligned, that all the towels were perfectly folded.  I would fold and refold until they were right.  It is only now that I realise that the nurse said no such thing. 

I started to feel terrified. At one point I got dressed, put a full face of makeup on and I left a note to the midwives saying that I had given up. I went from being on cloud nine expecting the arrival of my first child, to writing a suicide letter a few days later.  I truly believed that if the midwives let me leave that day, I wouldn’t be here. 

My relationship with my newborn had started to change. I believed that the baby was talking to me though his eyes, telling me that he hated me. I felt completely disconnected from him. I would forget I even had a baby. I started to believe that he was a different baby from the one I gave birth to.  My visions were worsening.  I couldn’t retain information. I had forgotten how to write my name.  It was so hard to concentrate on what people were saying. I asked for no visitors as I didn’t trust anyone. 

Steve had noticed I wasn’t myself and had told the midwives. A woman came through the door of my room. She stated she was the mental health specialist midwife. I screamed and ran into the corner of the room and wet myself out of fear. I believed she was going to take my baby away from me.  I could see the worry in my partners’ eyes and it broke my heart.

The midwives arranged for me to have an official mental health assessment with a psychiatrist. During the assessment, I was clinging on to a midwife’s hand.  ‘I’m sorry,’ ‘I’m sorry,’ ‘I’m sorry,’ I would cry, as I admitted my feelings about the baby. The midwife was trying to ease me, but I had a vision of everything in the background behind her face going dark and I became very afraid.  I was utterly terrified by what I was seeing and saying.  I felt like 500 different people. My mind was racing.  I believed I was dying. 

I couldn’t stay in the birthing centre for legal reasons.  Leaving the safety of the midwives there was hard.  They had been so kind and nurturing with me.  I was expressing milk for the baby at this point in order to allow for my breasts to heal.  I had to go to a maternity ward at the Royal Gwent Hospital which is a half hour drive away from the birthing centre.  For safety reasons, I had to go in an ambulance.  The ride was scary.  The staff were talking and I couldn’t understand them, it was like they were talking in gibberish.

During my time at this hospital, I had to be observed for 24 hours by a mental health nurse.  I went to the window of my room that looked out onto the city landscape.  I pushed the window open and noticed that it opened widely.  That was when I had the horrendous thought of throwing the baby out of the window.  I feel so sad and guilty writing that sentence.  I am a peaceful, non violent person.  I would never hurt anyone. 

I became frantic.  ‘I need to switch rooms!’ ‘I need to switch rooms!’ ‘Look at the window! Anything could happen!’ ‘You need to get that baby away from me!’ I knew my mind wasn’t my own and I didn’t trust myself around the baby.  I believed everyone was watching me and that there were cameras.  I believed I was being tested for something.

I asked for a pen and paper.   Initially I was trying to jot down the times I needed to express my milk for the baby but it turned into a way of processing what was happening in my mind.  I frantically wrote down what thought’s I was having.  I was terrified of how impulsive I was getting that I believed I was dangerous.  I believed that there was potential to harm myself or possibly my child.  I asked the baby to be taken away to another room as I didn’t trust myself.  Deep down there was a part of me screaming to come out, the old me.  I had thoughts of jumping off the transporter bridge I could see from the window.  I felt utterly trapped in my mind.  I felt as if my mind had been invaded by a foul dark creature.  I saw a shadow moving under my bed. My partner kindly looked underneath the bed for me and reassured me.  He was so supportive during this time.  He knew I was ill and was simply there for me.  I will never forget how loving he was. 

I still couldn’t sleep. My partner has told me recently that during this time I hadn’t slept for 5 days, with only 10 minutes of light sleeping here and there.  I would look in the mirror and not recognise myself.  I loathed myself.  I didn’t deserve sleep.  I didn’t deserve food.  I was an awful person for wishing harm on the baby.  I had no idea who I was, or what I had become.  I wrote down confusing thoughts.  I even wrote a bit of mad poetry.  I think I was searching for my baby through words.  I was searching for myself through words. 

Week 8 at Coombe Wood 'Time' 
I spent two nights in the maternity ward at The Royal Gwent.  I was on constant observation as my actions were so impulsive.  I had to talk and talk and talk to different faces to try and explain what I was seeing.  It felt so loud in the room.  All I could hear were voices and hospital trolleys.  My mind was constantly racing.  I had no concept of time.  I would look at the clock and 5 hours would have passed and it would feel like 5 minutes.  I believed I was allowing my baby to starve so I deserved to feel pain. I started refusing to take pain relief for a third degree tear I developed during child birth.  I needed to feel something real.  I was harming myself by starving myself and refusing relieving medication.

I was still having visions. I saw lots of shadows around people’s faces. I was still seeing images of dead babies on posters.  I thought the child I had in front of me hated me.  I was starting to really believe he wasn’t mine.  I felt nothing for him. This makes me feel sad writing this because now that I am recovering I love that little boy more than anything in the world.  I would go through it again, a thousand times over if it meant I could keep him forever.  However, at this point all I was feeling was pure fear.  I pleaded for people to help me get better. 

More sad news came about, the baby needed to be admitted to hospital.  He had developed an infection in his belly button.  My partner told me this and I didn’t even react.  I believed at this point that he wasn’t mine.  I started to believe the baby in front of me was someone elses and that mine had died. Eventually, I was transferred next to a mixed-sex psychiatric ward, while professionals waited for funding to come through from the Welsh Government for me to be transferred to a mother and baby unit in London. I stayed in the psychiatric ward for 4 days, away from my partner and my baby.  

Week 5 at Coombe Wood 'Lonely Boat'
My condition worsened whilst on the ward.  The ward felt like a grey prison.  The walls were grey and my room was very similar to that of a prison cell.  The delusion that my baby had died and that I was put in jail because I didn’t look after him properly became so real I would wail and wail in the night.  I would cry ‘He’s gone,’ ‘I’ve killed him,’ ‘I’m sorry, I’m sorry, I’m sorry.’  Mental health staff held my hand to go to sleep.  I had to take medication during my episodes to help me calm down.  I spent the days in my room.  Packing and repacking my bag for London.  I was still on constant observation, the door of the room remained open through my time there and someone would sit and watch me 24/7.  This was for my own safety.  The antipsychotic medication had started kicking in but I still truly believed my son had died.  All I felt was pure grief and guilt and was severely suicidal. 

I felt alone throughout the entire illness.  Despite others telling me that my son was ok and alive I just couldn’t feel it.  I would tell them that in my head he’s alive but in my heart I feel that I have lost him.  I would allow myself to feel no comfort.  I had failed to look after my boy and I felt like a terrible mother. 

There is a lot of evidence that suggests that being apart from your newborn could further jeopardise your bond.   The longer I spent away from him, the thought that he had died became more and more real. I only saw my baby once during my stay at the psychiatric ward. I felt excited and nauseous with anxiety at the thought of seeing the baby.  A lovely psychiatric nurse went into a quiet room with me before they arrived.  Steve came into the room and I gave him a frightened hug.  I was shaking.  He showed me the baby. I looked at the baby and saw the vision of him angry. I started crying in distress.  I felt I had seen a ghost. I was so scared Steve had to take the baby out of the room until I calmed down.  I tried so hard, I kept trying to tell myself that he was mine, but I just couldn’t truly believe it. The visit was exhausting.  I had never felt so low and disconnected from myself and my son than I did in that ward.

I believed I had brain damage. I know now that one of the symptoms of PP is severe confusion. I couldn’t remember little things like how to spell my babies name, what day of the week it was.  I couldn’t remember my words and I repeated myself a lot.  I developed a nervous twitch and a stutter.

I was found a space at Coombe Wood Mother and Baby unit, in London.  I traveled in a car with two mental health nurses whilst my partner drove behind with my mother-in-law and the baby.  The nurses were kind and kept telling me that I will improve in no time in the next place and the baby would be able to stay with me.  Despite being full of fear and despair during the chaotic car journey up, I was slowly clinging on to the hope that they could all be right.

Week 2 at Coombe Wood "My First Walk'
I arrived at the mother and baby mental health unit disorientated, exhausted, timid and severely confused.  I had no idea as to which part of London I was in.  I had never felt so lost.  Somewhere deep inside, I was clinging on to the hope that I will be reunited with my family. I was starting to believe that my partner was going to steal the baby from me. When my family arrived, My mother-in-law sat next to me on a sofa with my baby in her arms and I couldn’t look at him.  I just cried. I was afraid to look as I believed my baby had died.  

I remember feeling how bizarre this illness was. How bizarre the last two weeks had been.  I felt as if I was going to be locked away forever.   The first morning at the unit was a little clearer. I was so happy to be reunited with my partner after what felt like an eternity without him.  I believed we were on holiday and felt extremely happy. When I felt manic it was a large aspect to it that was fun. When your that high, its like you're driving fast in a car without the break pedal. It’s fun but also terrifying and deadly. 

Week 5 at Coombe Woode 'A Deckchair Family'

My partner was allowed to stay at the hospital every weekend which was amazing. One of the hospitals ethos was to keep families together as much as possible. I was able to go anywhere in the building and I noticed the garden they had outside.  The morning after we arrived we made a cup of tea and I went outside.  I had only realised that I hadn’t been outside since the baby was born, only to go into ambulances and cars. The baby was two weeks old by this point. I looked up at the sky and felt I had been freed from years in prison. The sky was blue and I found it beautiful.  This were sparrows and magpies.  I finally felt a moment of peace after a long time of misery.  It was then that I realised the worst was behind me and I was going to get better here. 


Week 9 at Coombe Wood, 'Family' 
I was treated in hospital for nearly 3 months.  At the mother and baby unit, there were health care assistants around the clock helping me look after my baby. I had access to baby massage and a sensory group that helped me bond with him.  Staff would mind the baby at night in order for me to sleep. After 2 weeks, I ate a full meal. My Psychiatrists and the Consultant kept a close eye on my medication. I received Art Therapy and EMDR Therapy.  I was diagnosed with PTSD and Maternal OCD following the psychosis. 

Week 9 at Coombe Wood 'Self Portrait 2'
Every staff member and patient came from all over the world, Portugal, The West Indies, Jamaica, South Africa, India, Romania, Italy, New Zealand, England, Scotland, Northern Ireland, Croatia, Nigeria and so on.  I felt the world had come together to help me and my baby.  I am eternally grateful to everyone who works at Coombe Wood. It was a hospital full of love. I had support from the other mothers too, mothers who got how I was feeling. Even though it was the hardest time in our lives, we eventually found ways of laughing.  I made very dear friends there. Everything would become a little bit clearer as the days went on.  The moment I realised that the baby had been mine all along was emotional.  Our bond grew from there and it is still growing now. I believe now that love wins all. 


Time for Change

My experience has led me to believe that there is a large stigma surrounding Mental Health.  It is often not talked about and dismissed. I hope that when people read this blog, they will have an insight into the warning signs of this dangerous illness. I hope it provides help to other survivors of PP. I hope that one day The Welsh Government agrees to set up a Mother and Baby Mental Health Unit here as it is so vital. I urge anyone to sign petitions and fight for it.  It is our collective responsibility to provide help and support mothers who are struggling with all postnatal illnesses. 
Week 8 at Coombe Wood 'Home.'


Symptoms of Postpartum Psychosis: 

  • feeling ‘high’, ‘manic’ or ‘on top of the world’
  • low mood and tearfulness
  • anxiety or irritability 
  • rapid changes in mood
  • severe confusion
  • being restless and agitated
  • racing thoughts
  • behaviour that is out of character
  • being more talkative, active and sociable than usual
  • being very withdrawn and not talking to people
  • finding it hard to sleep, or not wanting to sleep
  • losing your inhibitions
  • feeling paranoid, suspicious, fearful
  • feeling as if you’re in a dream world
  • delusions: these are odd thoughts or beliefs that are unlikely to be true. For example, you might believe you have won the lottery. You may think your baby is possessed by the devil. You might think people are out to get you.
  • hallucinations: this means you see, hear, feel or smell things that aren’t really there

Useful websites: 
http://www.nhs.uk/Conditions/postpartum-psychosis/Pages/Introduction.aspx#advice
http://www.app-network.org/


PETITON: PLEASE SIGN FOR THE WELSH GOVERNMENT TO DISCUSS HAVING A MOTHER AND BABY UNIT IN WALES 

https://you.38degrees.org.uk/petitions/no-mother-and-baby-unit-in-wales-perinatal-mental-health






Sunday, 17 May 2015

Save Your Library




It was my niece’s 1st birthday last week, bless her! My sister had arranged a little do at the Newbridge Memo. Stepping away from the cuteness of babies, I started to walk around the building. With Newbridge being our hometown, I think its safe to say that it is dear to lots of people. I hadn't explored it properly since its recent refurbishment, the library, ballroom and cinema is brilliant. I would urge anyone to go there and support it. They have done a great job.

Walking around I saw this poem on the landing heading up to the first floor.

We do not ask you to remember us, 
you have your lives to live as we had ours,
and ours we spent on life not memory.
We only ask you this - that you live well, 
here, in the places that our labour built,
here, beneath the sky we seldom saw, 
here, on the green earth whose black vein we mined 
and feel the freedom that we could not find. 

The Memo, was built and run by miners who felt they had a responsibility to educate the community they lived in; they didn't have universal education back then. Many Stutes, Libraries and Community Centres have been created for this reason.

So, are we free?

Here are some fancy stats for you, the 2010 National Survey of Adult (16-65) Skills in Wales showed that 51 per cent of adults were assessed to have Entry Level or below numeracy, 12 per cent of adults were assessed to have Entry Level or below literacy, and surprise surprise literacy and numeracy levels were lower among the unemployed.

We live in a society in which the necessity to have basic numeracy and literacy is essential in order to work and live. The library is a place for personal study, applying for jobs, free books to lend if you can't afford them, using computers, taking the kids, having a quiet half hour, finding out about local services. A way of keeping a society down is by leaving people to remain uneducated. Freedom is found through equality; an educated society is a more equal society. As you can see from the statistics, people at the bottom remain to be left behind. What are we and the local Council going to do about this? 

Well for starters, the Cardiff Council in which I live under at the moment, thinks the best idea is to close Roath Library….you what?! They have also thought the best course of action to take is to cut 90% of Youth Work in Cardiff.

The council want to tackle this literacy inequality by closing a free establishment that allows people from all backgrounds to develop their skills, skills like, oh I don’t know, LITERACY through having access to a plethora of knowledge and wisdom at their feet. Whilst doing this, they have also cut a service that focuses on facilitating personal, social and educational growth in young people to help them reach their full potential in society.

This is crazy talk. I found out yesterday at the brilliant anti-austerity march in Cardiff, (run by Cardiff’s People’s Assembly, links below) that activists have been campaigning very hard to prevent the closure of Cardiff libraries, they thought they had won until Cardiff Council went back on their word just after the election.

Closing this library and putting others in jeopardy would be failing the dreams of so many working people before us. Generations of ordinary people, who hoped that one day, people could live freely and live well. Closing an educative building that enables people to do so is a disgrace.


A Mass Read-In-Protest has been organised to take place on Wednesday 20th May at 6pm at Roath Library. I hope that people from Cardiff and beyond will support this. People are being robbed in front of our eyes, we have to protect and reclaim what is ours.

Save Roath Library! - Mass Read-In Protest - https://www.facebook.com/events/923064547715318/

Cardiff People’s Assembly - https://www.facebook.com/groups/cardiffpplsassembly/?fref=ts

Newbridge Memo - http://www.newbridgememo.co.uk/

Thursday, 14 May 2015

Finding Hope in Marching

The Tories are in power, elected by a minority of voters with a majority of seats....I know...what a shady democracy we live in.   I've developed a sleeping problem since Dimbleby unveiled the exit polls, when Cameron's face was projected on the side of the BBC studios **shudder**.  Sat in my little Cardiff flat with dawn approaching, I realised that soon enough that cruel blue manifesto will become a reality, with an added cruel cherry on top.  How are citizens going to cope? Yes, citizens, not chavs, not scroungers, not idiots, not migrants, not scum, citizens.  

Like many young people, I supported the Green Party with full gusto! I put a poster up in work and my facebook page looked like the ruddy Amazon rain forest!  I didn't come to supporting Green's lightly, I understood why people were going to tactically vote and I was afraid to vote with my heart myself in fear of this electoral conclusion.  Despite this, there was a part of me that thought, how can people disagree with these amazing green policies? A lot of people were going to vote green and we were going to see the beginning of change, a beginning to the return to Socialism (even better, Eco-Socialism).  A society based on compassion and fairness with the end of hedonism as we know it. Like many young people, my naivety got the better of me.     
In power is a party that hates young people, that demonizes, that ignores us.  Cameron during a Tory Conference referred to the young as idle and 'choosing' a life on the dole...at that time I was one of those 1 million young creatures.  During that time I was low, and I was one of the lucky ones, I had people around me.  The number 5 bus every Wednesday to the jobby was a struggle and I saw many sad young faces on those trips, heads down and quiet.  Altogether I spent a year jobless and 6 months on a work scheme, I can tell you one thing, young people aren't choosing anything mate.  I'm not trying to share a sob story, this is what people are facing but for lots it’s much worse. 

I read a book once about the life of a South Wales former miner, describing what it was like starting out mining as a young lad.  In order for young miners to learn the ropes, and for health and safety reasons they were given an older mentor that would look after them, to protect them really. Nowadays, I find young people are left unprotected and are seen as a scary burden, you nearly always need to have 'experience' in doing anything but without someone investing time, effort and faith (a.k.a money) in you, experience is never going to be gained.  I don't know whether they believe in self-fulfilling prophecy either but they should really think about how they treat their young. If you are treated like a menace, you become the menace.  

I feel that the young generation for a while has felt hopeless...looking in on society. Not affording a home, not being allowed housing benefit, being in debt from the get go and so on...with this extra brutal party in power now, it’s looking bleaker not just on young people but on all ordinary souls.


I had to do something.  I heard on facebook and twitter that Cardiff People's Assembly were holding an anti-austerity march.  I was a bit nervous but when I arrived I thought, thank f***, there are people who are sticking up for the young, the old, the disabled, the poor, thank f*** I have found a speck of humanity in this ever individualistic and money fuelled society. I bloody loved it.  A community that is pissed off too, a community that will not conform to these harsh decisions of austerity.  Across the country we have seen thousands organising.  In Bristol, an anti-austerity march was organised by group of A level students.  The young are angry and refuse to be ignored anymore.  

I watched an interview with Tony Benn today on You-Tube, he said that the greatest strength of the right is apathy.  If people are apathetic about change 'what's the point in marching, voting, blah blah blah' it'll never achieve anything, it’s a brilliant way of keeping a society down.  But he said that the greatest strength of the left is confidence and hope.  Confidence that you will change society from the ground up...through organisation, through unity, through peaceful protesting.   I believe that young people will play a big part in this.   I hope that people of all ages will join Cardiff People's Assembly march on Saturday 16th May at 1pm by the Nye Bevan statue on Queen's Street to begin this long journey.

I'm new to all this marching lark, I’m not the brightest and I'm only now beginning to invest my time into activism, but I’ve decided to use my voice and everyone should too. I'm a new wide-eyed marching ant and I hope that makes some sort of positive difference. 

 Lots of love.